Wednesday, February 13, 2008

February 13, 2008

Here are some pictures of our trip to Orlando:

This was in Blue Spring State Park. Michael didn't like the sun. He would not look up at all.





This was in downtown DeLand. Michael is always such a happy boy!!! He is the best!!!

Are we done taking pictures already?

Daddy is trying to make you laugh the old man laugh, while Cici is holding you :)

This is Claudia's husband, Jerry on his Harley


We drove back from Orlando on Sunday and took the slow way home. I love road trips with Robert!!!
Monday Michael got his Synagis shot. No fun!! The pediatrician looked at him and he was doing much better already. I told Dr. Perello that Michael is a little behind developmentally; that Nina is doing so awesome and Michael can't keep up with her. He he looked at me and said: 'are you kidding? She is a girl!!! And remember that Michael is a miracle baby; please give him a chance to catch up!!' I love Dr. Perello!! He reminds me of Dr. Phil :)
We need to go back on Monday (Michael's birthday) for more shots.
After our doctor's appointment we had to go to Jackson Memorial for another booth testing (the Cochlear Implant evaluation). They tested him without the hearing aids, because the molds were so small, we couldn't even keep the hearing aids in the last few days!!! He has been much more responsive lately without the aids to different sounds. They want to test him again next week with the new molds.

After the booth test, we went to see Megan at Dr. Fifer's office to get his new molds. It takes about 3 to 4 weeks to receive new molds and Michael grows so fast now (he was 15 pounds, 12 ounces at the pediatrician) that the new ones are already small!!! We might have to go back next week already to have new molds made again!! We love seeing Megan; she is such a sweet heart. Of course Michael spit up on her as soon as we walked in!! Luckily she was wearing scrubs :) Megan and Lynn will come over next week to see Michael had home. We are looking forward to that!!

Tuesday we had a day off. We both loved it!!! The weather was awful (a tornado watch all day) and we didn't even go outside.

Today, Natalia was here. She is focusing more on her study now, so we don't see her as much. But when she is here, we enjoy having her around!! We went to therapy and Michael did really well with ST. He was trying to mimic Becky and he was actually making a 'fart' sound by blowing, instead of making raspberry's (a little hard to explain, but it was awesome!!). He turned around a few times for Lyra and we were very proud of him.

We met with Celi (Nina and Noah's mom). Last week on Monday, Noah was disconnected from the tubes and the trachea. He was put on a conventional ventilator. The family was called in to come and say goodbye to him. But Noah is a fighter and a miracle baby. No doctor can figure him out!! A week and a half after the doctor's thought his final hours had come; he is still hanging in there!! He needs everybody's prayers more than ever!!! Thanks!!!

1 comment:

Big Ali said...

I hope you are doing well and Michael looks wonderful. I haven't commented in a while but I have been keeping up. Just wanted to say HI
Mama Ali