May 1, 2008

Yesterday, Michael had ST and OT. Becky (ST) wasn't happy. Michael would not eat for her. I hope this has to do with his teething and that it's temporary. Robert mentioned that Michael doesn't like to be held when he is eating and I tried that today. I put him in his chair or the car seat and he was right. He ate much better!! I have to mention this to Becky next time...
Michael wasn't in a very good mood for OT. Only when Nina arrived, he started getting interested. Maria (OT) started blowing bubbles for Michael and Nina (they were sitting next to each other, like two little toddlers) and Nina was so funny. In anticipation of the bubbles she would already squeeze her eyes closed, so they wouldn't go in her eyes, but she also missed the fun. She is so adorable!!!

After therapy we had to go see the Pulmonologist. He was excited to see Michael again. His saturations were good and his lungs sounded really clear. He changed the Lasix to once a day and next month, we'll try to get him off the Lasix. He still needs the Pulmicort (air treatments) twice a day.

Today we went to see Megan at the Mailman Center, to get Michael's hearing aids adjusted. They had to be adjusted, based on the last booth test he had done. This is a temporary adjustment, since the testing is not done yet. Megan tested his ears and he might have a little bit of fluid left from the ear infection and the pneumonia. This would make sense, because he doesn't like laying flat after he was sleeping. Hopefully this will resolve quickly.
Megan will be leaving the Mailman Center in June and we are NOT happy about that. We will miss her for sure!!!

Afterwards we went to see Kathy for auditory verbal therapy. Michael loves it. He gets to play with different toys all the time :)
We were able to pick up Natalia, who now works at Jackson Memorial, as a research associate. We gave her a ride home. She had to prepare for her final test. Please keep your fingers crossed for her!!! It was nice to see her, even though it was brief.

Before Michael got sick, Josh had taken some pictures of Michael. Jessie and Anna had given him a tattoo and tried to give him a Mohawk. It looked so cute. Also in the pictures, you can see Uncle David making Michael fly in the air. Michael absolutely loved it.
You can click on the picture to start:


My Montage 5/1/08

PS. Thank you Brett and Jodi for your generous donation for March for Babies!!!